Good morning everyone. Thank you to those of you who are being so supportive. It's strange how signing on to aol and seeing your comments really does help! So thank you again!
We are going to Rayanna's dance program thank god she feels well enough to go. She is so frustrated with all of her symptoms, and all of these meds! As of right now she is feeling half way ok, that is not to say in two hours she will not be sick again. But I am keeping my fingers crossed she will actually go all day without the pain, and bleeding, and nausea.
I was reading all of her possible side effects for the 3 new meds I picked up yesterday and the nausea one is scary! It apparently is usually a med for chemo patients and radiation patients. I am going to give it to her as minimal as possible. The one side effect that stuck out to me is it can cause temporary vision loss. I understand it says temporary, and I understand it is only a possible side effect. But how scary is that? It would kill me if that happened to my 10 year old even if it were only temporary!!
One thing I have not explained a whole lot in here is the bleeding I have spoke of a couple times. It may be TMI for some but I will quickly explain it. For the last 10 weeks everytime she goes to the bathroom and goes BM blood drips out of her like a faucet. It is because her lining of her colon is so inflammed. It is bothersome to see so much blood when she goes. She did make a comment last night to me "mom I am starting to get used to it, but everytime I see all the blood it feels so weird because I know it is not supposed to be there"
Well I should end this and get ready to go! I will take pictures at the program to post later. It is a new day and I am feeling a little better. Now I need to try to get everything done that needs to be done. Or at least work at getting what I can done.
I hope everyone is having a great weekend.
Hugs and love,